(It was scary, ask David!)Įliza has been unable to work for 2 years since this relapse, and had already reduced her hours due to the toll of chronic infections, plus, due to her fluctuating health, she has bravely managed many interruptions to her career and underemployment for more than a decade while dealing with flares. Similarly, an attempt to relocate for a few days’ change of scenery in March led to one of the worst crashes yet in the past 13 years. During this past winter she was not well enough to have a visitor for four months except for 60 minutes on Christmas Day, which resulted in a severe crash. For Eliza, our vibrant, sharp, social, energetic, creative and passionate friend, it has indeed been awful. This is awful for any person to experience. Patients often must live within a small ‘energy envelope’, exerting beyond this has devastating consequences where the body can crash for weeks, months or even years. She has experienced a torturous existence, often bedbound in a dark room, managing convulsions, immune surges, cellular crashes and a suite of debilitating impacts of this disease throughout her whole body.
#HEY ELIZA GOFUNDME FULL#
In her current condition, she is housebound and requires the assistance of a wheelchair and full time care.
In October 2020 she suffered a sudden major relapse following chronic infections and surgery. If you’ve seen Eliza in healthier times you may not even be aware of the full extent of her condition or just how hard she has fought for so long, especially throughout her twenties. Over the past decade and a half, she's had bed-ridden years and some healthier years. She now suffers from Myalgic Encephalomyelitis (ME), a devastating, serious and disabling disease, often first triggered by viral onset.
In March 2009, Eliza caught a virus and never fully recovered. We are hoping to raise at least Australian $75,000 AUD (that’s approximately US $54,150 or EUR €49,230). While the treatments are promising and offer some hope of relief from her horrible condition, they are understandably expensive, especially when international travel and accommodation for long stints is required.Īnd that’s why we’re here, to ask you, Eliza’s friends, family, colleagues and contacts to help her access these tests and treatments, which are only available at a handful of highly specialised locations worldwide. She took a physical risk travelling to a research laboratory in Germany and tested positive for all biomarkers that make her a candidate for this unique cardiovascular and immunological care. Daily tasks such as brushing her teeth, taking a shower, or even going to the bathroom require more than second thought, because every physical movement and ounce of energy must be carefully managed.Ĭurrently, while living in Europe, Eliza has a unique opportunity to access highly specialised testing and intensive blood treatments being used to treat this disease for the first time. She requires the assistance of a wheelchair, oxygen, and full time care. She has been in major relapse since 2020, leaving her house-bound, mostly bed-bound and unable to feed, cook, care or shop for herself. Help us raise $75,000 AUD (US $54,150 or EUR €49,230) to help her access specialised testing and intensive blood treatments, only available at a handful of clinics worldwide.Įliza suffers from Myalgic Encephalomyelitis (ME): a devastating, serious and disabling disease that has no known cure. Eliza suffers from Myalgic Encephalomyelitis (ME): a devastating, serious and disabling disease that has no known cure.
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